Monday, August 27, 2007

Sam's heart and seizures

First, let me write this to Will P. - I think I never changed your email address in my mass email - can you please write us with the correct one and send your cell phone too. Sorry for my negligence.

This is our mass email from earlier today. I'm posting it on my blog since there are so many people praying for him and they all want to know the latest. It's easier than calling everyone.



We just got back from the pediatrician. Here's what we know...


The seizures were most likely caused by the fever spikes that he had (due to a viral infection). However, there is some small chance that it could be a heart problem that caused the seizures. Therefore, we will be seeing a cardiologist on Friday and he will assess all of the findings so far. According to our doctor this morning, they should be able to see everything they need to from the information they've already gathered.


We are giving Sam further Tylenol to reduce his fever until Wednesday night, assuming there are no other problems between now and then.


The doctor this morning said that one febrile seizure is normal, but two febrile seizures are rare. Three would be almost unheard of, but if it was going to happen it should have happened within 8 hours of the last one. So, like my friend Erica told me, the further away from the last seizure we get, the better. However, we are still being cautious and need to continue watching him for another one, in case it is related to his heart or he has a third one from another fever spike (again, the chances of this are minimal).


We are to stay at home this week and try to let Sam rest. He is a little uncoordinated right now (falling down when crawling or standing), but the doctor said he will be, because one seizure's energy output is equivalent to running a marathon and Sam's little body is probably very tired. He is in great spirits though - he even sang along with his Uncle Adam last night when he played the guitar and danced a little too.


Keep praying for him. Please continue sending these messages to your prayer supporters as well, we appreciate it.

God is with us.


Blessings,


Teesa and Bill K

When Sam could finally stand up (when he got enough energy), he was pitiful. He'd fall down quickly afterwards. That cast on his arm is where the IV was - to keep him from pulling it out.

He didn't take a paci before this experience. He wants it all the time now. This pic is from when he didn't have a fever for a few hours. Those eyes really reveal the struggles he'd been through.He only wanted Mommy and Mommy's kisses. He won't go to sleep now without me holding him and he falls asleep in the crook of my neck. He never used to cuddle - I do believe he's a bit insecure.His hospital room.

UPDATE: He had 100.3 before he went down tonight. We're keeping a close eye on his temp.

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