Sunday, October 19, 2008

Tuesday, October 14, 2008

Just About There!!!

I just got this email - it is only an interpretation of what should happen, but if it does go through, then we changed the legislation. Thanks to everyone who helped. Keep those letters coming to your Congress (House and Senate) Reps, just to make sure!!


Thanks you, from the bottom of our hearts!!

Teesa and Bill





Dear Families & Friends,

After advocating on behalf of adoptive families for the past 6 months, Joint Council is very pleased to confirm that USCIS has announced a very positive ruling concerning the I-600A process.

In summary, it is our understanding that, effective immediately, families who filed Form I-600A, Application for Advance Processing of Orphan Petition, prior to April 1, 2008 and whose USCIS approval of that petition (aka the I-171H) has not expired, will be able to proceed with their adoption under the I-600A process if they take
certain steps while their approval remain valid. This means that families
with valid Form I-600A approvals will not be required to transition to The Hague process via Form I-800A. In order to maintain their status as ‘grandfathered’ cases, families with non-expired Form I-600A approvals must request a one-time free extension. Then, prior to the expiration of the one-time free extension, families must file a new Form I-600A and pay the appropriate fee.


It is also our understanding that families with a Form I-600A approval that has expired and who have not obtained an extension or filed a new Form I-600A, will need to undertake the Hague process. The Hague process will also apply to any petitioner who has not completed their adoption by 2014.

As we noted in our Position Statement, this ruling will save adoptive families thousands of dollars, eliminate countless sleepless nights and ensures that their adoption can proceed to completion.

On behalf of over 10,000 adoptive families, Joint Council extends its appreciation to the following individuals and organizations for their tireless efforts.
·
Diane Kunz, Executive Director of the Center for Adoption Policy
·
Dianne Pearce, Waiting Parent and Co-Organizer of the Fairness for Families
Petition
·
Debbie Reynolds, Joint Council China Caucus Co-Chairperson
·
Kathleen Strottman, Executive Director of the Congressional Coalition on
Adoption Institute
·
David Yurkovich, Waiting Parent and Co-Organizer of the Fairness for Families
Petition
·
Members of the United States Congress

·
United States Citizenship and Immigration Services

We offer our collective congratulations to everyone who participated in
the Joint Council Call-To-Action and the Adoption for All: Fairness for Families
petition. And we also send our congratulations to all who participated in
the countless meetings, conference calls and emails over the past 6-months.
Joint Council is built on a principle of collaboration and this very successful
effort clearly demonstrates this principle in action. Our collective voice
is definitely stronger than any singular organization or individual.

Joint Council notes that our interpretation of the ruling is offered as a courtesy only and should not be used in making determinations or decisions. Please refer to the full text of the announcements by USCIS which can be found at USCIS Announcement and USCIS Q&A in making any decisions.

Joint Council will provide more specifics as they become available and asks you to visit our website for the latest news and updates.


Best Wishes & Congratulations,

Tom, Joint Council of International Services

Monday, October 13, 2008

Congressional Representative

Just a reminder to contact your Congressional Reps (both in the House and Senate) Tuesday, Wednesday and Thursday.



http://www.jcics.org/5WaystoHelp.htm





On October 14th, 15th, and 16th, contact your Congressional representatives, both in the House and Senate.


a. Joint Council is working with Members of Congress and seeks their participation in resolving this issue.
b. You can find your Senators’ phone numbers and email addresses at http://www.senate.gov/.
c. You can find your Representative’s phone number and email address at http://www.house.gov/.
d. Include the following in your calls and emails.
· A brief explanation of the situation.
· “I/we understand that USCIS is actively engaged in seeking a resolution to the I-600A issue. I/we respectfully ask the Senator/Congressperson to contact USCIS and express their support of efforts to find an immediate resolution to the I-600A Extension issue.”
· A kind ‘thank you’.
e. Stand ready to expand and intensify your efforts if needed.

Sunday, October 12, 2008

Nigerian Dwarf Goats!

Please see the post below entitled "Adoption Emergency" if you haven't already. We, along with nearly ten thousand others, really need your help to change the legislation that is going to be discussed later this week.




You've heard me talk before about how cool our neighborhood is. Well, it just got a little cooler. Our next-door-neighbors just adopted three Nigerian Dwarf goats!! A grandmother, a mother and her two week-old baby.





Sam and I walked over today to meet the new goats and they are really neat. The baby, Sweet Pea, is especially cute.



Sam got to sit in a chair and hold her, but that didn't tickle him like playing with her back leg and tail did. I don't know why he has a fascination with tails, but he does. You can ask any random stranger with a dog at the Greenway. He loves playing with tails.





Our neighbor also has lots of chickens and a few turkeys. Sam and I brought some stale bread over and he got to feed them today too. Have you ever eaten a turkey egg? Well, I have and they are absolutely delicious. Really robust in flavor.



I am talking with a good friend of mine who knows tons about goats and asking her about recipes. I know from my time in China that goats milk is extremely healthy. I can't wait to fatten my boy up with some!

Friday, October 10, 2008

Response

Please sign the petition and send an email (see my previous post, if you have not already). It sounds like this might be working. We desperately want our adopted baby and getting affecting this legislation is one less stumbling block for us!

Here is the response I'm sure many of you are receiving, if you're writing those emails!

Thank you for taking the time to write and express your concern with the I-600A renewal issue. While we would prefer to reply to each of you individually, the overwhelming number of persons affected by this issue makes this type
of response impossible at this time. Please know that we both appreciate and share your concern and will be passing along your comments directly to the Members of Congressional Coalition on Adoption. Our communications with USCIS on this issue lead us to believe that your efforts are already making a difference.

The Congressional Coalition on Adoption Institute (CCAI) is pleased to work with JCICS and others to help ensure that your voices are heard in Washington. It is through efforts like these that CCAI works to bring the 215 members of the Congressional Coalition on Adoption face to face with the issues affecting children in need of homes and families wanting to adopt them. We look forward to continuing to work with you toward making the dream of a family a reality for every child.

Thank you again for taking time to make your voice heard.

Sincerely,
Mark Moore
Associate Director of Policy
Congressional Coalition on Adoption Institute

311 Massachusetts Avenue, NE

Washington, DC 20002

202-544-8500202-544-8501 (fax)

www.ccainstitute.org


Wednesday, October 08, 2008

Adoption Emergency!

Update:
Thank you to everyone who is helping with this legislation. Please don't forget, on top of the petition:

Today, send an email in support of the Joint Council Position Paper on I-600A Renewals to Joint Council at advocate@jcics.org and the Congressional Coalition on Adoption Institute at mark@ccainstitute.org

Please say something like:

This legislation violates the idea that was initially presented to
adoptive parents. Adoptive parents to be grandfather-claused in and not included in the new legislation. Please do not add time, paperwork and extra expense to
their already difficult wait. The orphans are also the ones suffering because of this change.


Thank you for your consideration,

(your name)



Original post follows:
ave a very important request to ask of you regarding international adoption. I need you to sign a petition to USCIS and Congress to get them to honor our original I-600A form (immigration), and nearly 10,000 other people's.

Congress' original intention was that ALL families who had entered into the adoption process prior to April 2008 be allowed to complete the adoptions with the pre-Hague regulations. Many families will not even qualify under the Hague regulations as they are similar to the new regulations that went into effect in China after May 2007.

What can YOU do?

There is an organization that is taking a petition to USCIS and Congress to get them to honor the original I-600A agreement. But it needs letters and signatures, before the 16th.

Please go to this website:

http://www.jcics.org/5WaystoHelp.htm

On #2 send a short email to the 2 links requesting they honor our I-600A original application and allow additional extensions until the adoption is completed. The burden of spending thousands more for the adoptions is not right.

On #3 Sign the petition and anyone else you can think of! You have to sign in individually to do this as only one person at a time can sign it.

On #4 Contact your Congressional Senators and Representatives to support granting additional extension to original I-600A applications until the adoption is completed - on October 14, 15 and 16th.

And in addition, be praying that Congress and USCIS will honor the families in the adoption process by granting as many I-600A extensions as needed to the families in process.



You know that we have been in the process of adoption for many years. Please please help us - the least you can do is to sign the petition. Please.

Sunday, October 05, 2008

Party Pics

We had an awesome time at Sam's party yesterday. Unfortunately, no family members were able to be there, but our substitute family members filled in perfectly.


Jenny, one of my best friends and college roommate, came in from Durham just for the party. We had lots of other friends, some old some new, and it made for an amazing party.

Sam and Lillian

We picked raspberries, pears, apples, we had wagon rides, ate Carolina Treat chicken (grilled), homemade salsa, homemade dip, and, of course, homemade cake!


I had every one bring a train of their choosing for Sam and he also got a new train table. A lot of the trains he got fit perfectly into his new table and some of them are great for bath time fun or just rolling around the house. His grandparents in Thailand sent a large train-shaped toy box. Some people gave books about trains and I am here to tell you that he loved every single gift.




After the first few presents, he would say, "more presents, pweeze!" Then he began saying "more trains!!" I was surprised that there were only two repeats with the trains too. It's amazing how many train toys there are out there!


There were three little boys there who all have birthdays within three weeks of each other and one little girl who is the oldest of them all. This is Trathan (pronounced like Nathan). His birthday is on October 8th - my original due date.



Elijah is on the right, he's the oldest of the three. Everyone got along really well too.


Trathan's Daddy pulled them around the yard, which was no small feat, since it is a sloping yard.

I thought this was a sweet photo, because Jenny always helps open Sam's gifts at his birthday parties.
Last year she only had one kid waiting on her and this year she had two! Now that I look at the photos, I notice that both gifts Jenny had to help with were from Bill's Aunt Beth. Hmmm, I wonder why her gifts are always tied in so well?

Thanks to everyone who helped make it a great party. Sam's guayavera (shirt) is from Mexico given by his Aunt Julieta and Uncle Seth. His aunts and uncles all sent gifts via the mail and we really appreciated every one of them.

Some folks (who don't have kids) stayed until about 11pm last night. We watched a movie and looked at old pictures that Bill just brought back from China and laughed until our sides hurt. What a blessing to have friends like that in our lives!

Happy Birthday, Sam!

Thursday, October 02, 2008

Birthday Video

Here he is eating the cake I made for him. I did a horrible job, so you won't see any photos of the actual cake. But, it was a practice cake, so it was okay.


Happy 2nd Birthday, Sam


Two years ago today I ended my 23.5 hour struggle of contractions (really three months, if you count all the bed rest contractions) and 4 hours of pushing. Sam William Klear was born to us in Hong Kong.

He didn't cry after he was born - not even for the first three days. All the nurses kept betting that he would cry before he left the hospital, and he finally did on day four.


Sam, Day 2

God really has His hand on this child. We never thought he'd make it when I was put into a Chinese hospital for a week for pre-term labor at 26 weeks pregnancy. I flew to Thailand for another week immediately following and then back to China. After two more weeks of pre-term labor and one very intense night of contractions 5-7 minutes apart, I flew to Hong Kong where I was transferred from the plane to an ambulance on a gurney. I stayed in the hospital for another week and a half and then went to an apartment where I stayed on my left side for three months.

I still can't believe he is with us. That doesn't even include all of the other issues we've had since returning to America, but you all know those stories.





What a blessing to have my little boy. I don't think it's a coincidence that I dreamt about his sister last night for the first time. By next year, we will have four in our family, celebrating his birthday together.



Happy Birthday, Sam!!


Sunday, September 28, 2008

Formula

You know what I just realized? I'm so stupid for not seeing this before. Our baby, Carolina, who I said I wouldn't mention again until we go the referral, has probably had the bad formula in China. Can you pray for her right now? Pray for her to be safe and that her kidneys wouldn't be affected. She is in an orphanage somewhere waiting on us. I hope she's okay.

Friday, September 26, 2008

Out of Gas

Would you believe that Western North Carolina is running out of gas? I heard on the news this morning that Charlotte only had three stations with gas. Sam and I got caught up in the mellay yesterday when I realized I only had 1/8 of a tank left.

I drove all around town yesterday looking for gas and there was none. Big signs were posted everywhere reading, "out of gas." I found an Exxon that the tanker was just leaving. When I pulled in, a man approached my car and told me he was ahead of me and that I was definitely at the end of the line. He said things might not be very cordial. I conceded very quickly and said I would leave if that would make him happy. I did end up getting gas ahead of him, but only because my tank is on the left side and his apparently is on the right.

It's all from Ike. Governor Easley promises this will end soon. We're being told next week may show signs of relief. I read today that Asheville's community college was actually shutting down since there are so many commuters. There are a lot of things being canceled.

I went straight from the Exxon station to the grocery store, where I stocked up on supplies, then I came home. I haven't left since. I don't plan on leaving either. The Exxon station's restriction was 10 gallons per car, so I only have just under 3/4 of a tank left. Bill's car also has 3/4 of a tank, so at least I'll have that in case of an emergency.

We're hunkering down and plan on staying put until mid-week next week, at least. We have plenty of food, but I think Sam is going to go crazy unless the sun comes back out. He was expressing his displeasure at me not allowing him to go outside today.

When smoke from a burner got the smoke alarm up in arms around dinner-time, I had to open all the windows and doors. Sam took the opportunity to tempt himself at the doorway for about 15 minutes before he took the plunge and went outside in the cold rain. I heard his socked-feet splashing on the floor when he came back in a second later. That's how I knew. Kids never think of hiding things like that. He was quickly punished (his pretzels were taken away) and got some nice warm clothes on.

Now he's safely in his warm cozy bed with a thick comforter on him. I'm not far behind.

Thursday, September 25, 2008

Poison Control, Round 2

Ever seen this berry growing in your yard? We have. It's right next to the raspberry bushes. And, exactly what you're thinking happened. Sam went right up to them and ate them, thinking they were grapes. He came back to me with purple hands, a purple tongue and a purple face.

Poison Control said they are indeed poisonous and cause intense diarrhea. This website, says vomiting can occur too.

I don't think he ate too many. I ate one too, to see what it was, and it was so bitter I had to spit it out. If he has more than two bouts of diarrhea in the next six hours, we'll call PC back and probably head to the hospital, since dehydration is cause for monitoring his heart.

He sure keeps me on my toes.

Tuesday, September 23, 2008

Impending Adoption

I know I haven't posted much about our adoption on here. If you've talked to me in person or via email, you know it's on the forefront of my mind all the time. I keep my blogging on the subject to a minimum due to some, er, political reasons. However, be assured that we are eagerly waiting our little Carolina. Whenever we are finally matched with her, I will post tons of pictures and give you lots of details.

Some friends I met via the internet, who live close by, are currently in Vietnam picking up their little girl. Every morning the first thing I do is check her blog to see if they've posted pictures of her and to hear their tale. I saw pictures of her this morning and my eyes just filled up with tears. I am so happy for them and I am so anxious to meet our own little girl.

We spend a lot of time with Sam's friend Elijah. He had the blessing of being adopted from Guatamala by his mommy and daddy, Trish and Brian. We went to their house this morning and I was reminded, again, how blessed they are. They deal with the same struggles as every parent with Elijah and it is obvious he is well-loved by the way they handle it. Trish is an amazing mother. They are really a tight family. I hope that Carolina will feel the same love from us.

I spoke to Sam this morning about Carolina. He can barely say her name (kay-lie-na) and says having a little sister would be "coo." I think he'll be a great big brother.

I haven't started working on her bedroom yet. I think we'll wait until we are finally matched with her before we do anything. It has almost been five years since we first sent in our application to our agency and it just doesn't feel real. But, lots of our friends have completed their adoptions recently and we are constantly reminded that ours is impending. We absolutely can't wait.

A little over five years ago, I bought a stuffed panda bear while we were in Chengdu (where the earthquake hit recently) visiting their panda refuge. It was for our adopted baby - the one we had just started the process for. That little bear was the first and only thing I purchased for the baby I knew we would eventually have. Even after Sam was born, I put the bear away because it was specifically for Carolina, not Sam. It is waiting in our storage unit now and Bill is going to get it next week. I cannot wait to take it with me when we pick her up and see her eyes examine it for the first time. A stuffed panda bear that will likely be five and a half years old by the time she finally holds it - a symbol of the hope we had that God would finally bring us our adopted baby and make our family complete.

This is likely the last time I will post about Carolina until we are finally matched with her. But, for those of you who were wondering, she is still on our minds all the time and we are continuing with our plans to adopt her. We feel that God has called us to become adoptive parents and we know she is in an orphanage or with a foster family right now, waiting to be united with her American family.

If you think of her, pray for her health and safety. Carolina is waiting and so are we.

Sunday, September 21, 2008

Pear Pickin'



Did I mention we have a pear tree at our house?

Bill and Sam went out last week and picked a bunch for us. My cousin told us to wrap them in newspaper, put them in the basement and in two weeks, they'll be just ripe enough to eat. Here are some photos from the fun adventure. Sam loves picking apples or pears or raspberries or whatever else he can (my green tomatoes are a commonly picked item too).




Daddy's pointing to a good one.

Going in for the kill.

Got it!

Beaming with pleasure.

Aren't my boys handsome?

Look at the pride in that face.

Here's another one, a bit higher up. I love how you can see through the trees to his big grin.

And another one.

And, in the next photo I can still hear my words ringing,

"DON'T THROW THE PEAR, SAM!"

My favorite.

Sabbath

Sam and I had a great time in church today. It's not highly unusual to enjoy a service, but it is highly unusual for me to be able to pay attention to every word spoken. Sam was on his best behavior and colored or read through most of it.

Before I left for church this morning, I put in a load of cloth diapers. I remember thinking I shouldn't do this on Sunday, but I did it anyway.

Then, lo and behold, our pastor spoke about keeping the Sabbath, among other things. While we were overseas, we used different days of the week as our Sabbath. We almost always took one day every week and rested on it. We didn't meet any of our friends or do any work. We usually stayed home. It sometimes fell on Sundays, but more often than not, it didn't.

Since we've been in America, we've had a very difficult time keeping a day of rest for ourselves. Bill works five days a week, like most of you reading this, and has very limited time on the weekends to get everything done.

This morning, our pastor reminded me that in American culture, Sunday is the day of rest for Christians. Our neighbors watch us on these days and see our behavior. But, more importantly, my body needs a day of rest.

As many mothers out there are aware, it is very difficult to actually "rest" on these days. However, I do not need to do laundry, sweep, mop, wash dishes - all of the things that I used to abstain from on our day of rest. They're unimportant in the scheme of things, which are: First and foremost, obeying God's commandment to keep a day of rest. Secondly, to give my body and mind rest. Thirdly, to be a witness to those around me - showing that I can and will keep the Lord's commandments.

I have really been challenged. Something that used to be so important to me has fallen by the wayside and I am at fault for allowing that to happen. It is a sin. It is a sin because I was disobeying the Lord's commandment. Not only that, but I knew it was wrong - even this morning as I put a load in the washer - but I did it anyway.

I realize there are bigger things going on in the world - even in my own life. But, I am going to take a small step forward with this and obey His commandment.

I often see Sam doing things even though I tell him not to. Or, I ask him to do something and he won't. Do you ever resist what the Lord is telling you? Has He asked you to do something and you are hesitant? I hope today things can change for you.

I'm going to hang out at our home, think about His word in my heart, sing songs to my son and play my guitar for him for the first time in weeks and enjoy the Lord's day. A day that He has given me and a day that He has chosen to open my eyes to. I'm only glad that I responded. Have you?

Friday, September 19, 2008

Maggots. Lots of Maggots.

Please, for goodness' sake, do not read this if you are squeamish. Just skip to another post, when we were having happier times.

I had a gross experience today at the supermarket.

Before I tell you what happened there, here's a rundown of my afternoon:

I had taken the trash can over to the dump around 4pm and emptied it there. It was really heavy and I had to take everything out piece by piece. It had obviously been too long since we emptied it.

Then Sam and I went over to Old Navy, where they were having 20% off if you say BFF at checkout. You're supposed to bring your BFF, but I only had Sam. Oh well. They gave it to me anyway. By the way, Old Navy is at the mall, which is a tiny little place that has a Panera Bread, Belk, JC Penneys and now a TJ Max!

We walked the mall a while and it was nice. Just Sam and me. We visited the bookstore - where he ran from book to book saying "wow" the whole time. He is so cute. He told me it was time to eat, so I took him to Panera Bread and got him a bagel and cream cheese and split my turkey sandwich with him, along with tomato soup. He loved it, especially dipping the apple into cream cheese.

We had long conversations about how much he loves daddy and about all the cool things at the mall, his trip to Tweetsie this morning and, of course, we talked about cream cheese. Plus, the really neat rubber ball he found at Old Navy under one of the displays while having a little tantrum. It's really a cool ball and they said we could keep it.

After supper, we went to the supermarket.

Are you tracking with me yet? Do you know where I'm going with this?

I went in to get milk and mozz cheese. Of course, I got the wrong milk - I just bought milk for me yesterday, but today needed milk for him. I got more milk for me. Duh. Then I went out to the car, all the while having wonderful conversation with my beautiful son.

I pulled up to the back of the car and opened the tailgate. I opened up the black bag I keep in there to put the groceries in and there were maggots everywhere. Honest to goodness maggots.

I threw it on the ground. I'm getting grossed out just now thinking about it. Sam watched as I had to empty all the maggots from the bag while saying yuck the whole time. Then I turned my attention to the car.

I can't say anymore.

I'm getting grossed out thinking about it.

I just said that. I mean it.

ICK.

Needless to say, the trash can had released its thunder on me. I learned my lesson. Don't wait so long to take the trash to the dump next time. Even if it's not full.

This reminds me of a funny story that happened in China. If you have actually read to this point and you feel like they're all over you, you'll want to stop here. It's about to get worse.

One day, I was cooking in my kitchen with a friend. I was happily teaching him to make smashed potatoes. When I leaned down to open the gas line to our burner, I noticed an odd smell. I asked Tim if he smelled it too, and he did. "Smells like rotting flesh," I believe were his exact words.

I looked around the kitchen, but couldn't find anything odd. About a week later, give or take a few days, I was cleaning my kitchen. Sweeping, mopping...general sanitizing. I moved the gas tank a little (it was up to my hip in height) and saw a few maggots.

"Gross," I thought. So, I swept them up and went on my merry way.

Later, I recounted the story to Bill. To which he replied, "Teesa, if there are maggots, there's rotting flesh." What? No way. Surely there could be maggots without rotting flesh.

I should go back a little bit and give you some back-story. Our kitchen at the end of our dorm hallway. It was very common to walk into the kitchen, flip on the light and see a rat running at you. Very common. Our wonderful American goodies that we had in our cabinets (like chocolate chips and various mixes) were often eaten by these horrid rats. To which we responded, like any normal person, by placing rat poison everywhere.

Back to my story. Are you still with me on this one too? Do you know where I'm going?

Bill walked me into the kitchen and pulled the gas tank out from the wall. There, lying on the floor was...you know exactly what it was. What's your imagination telling you? Do you think it was a dead rat? Well, you're wrong. It wasn't a rat. I guess "technically" it was a rat, but only the sad, dried remnants of what used to be a rat. The flesh had been eaten by maggots.

All that was left was some fur, bones and a horrible tail. Oh, that tail still haunts me. I can still seei it showing from around the tank.

And, do you know how my wonderful husband responded? Did he clean it up and never make me see it again? No.

My brilliant husband did something that only he would have the guts to do. He made me clean it up. He knew that I was going to face my more dead rats while I lived in China, and some that he wouldn't be around for. Anybody have a husband make them do this with spiders? I envy you.

He put it on a dustpan and handed the dustpan to me. He told me, in all seriousness, to take it up to the roof and throw it off the building into the trash pile at the corner (where all of the rats were no doubt procreating and surviving off of the wonderful remnants of other people's garbage).

I cried. I pleaded. I begged. "Please don't make me do this." He calmly explained that I needed to do this while he was there to stand by me, in case he wasn't the next time. He loved me and wanted me to be okay without him. I think I remember him even asking me to do this and I actually agreed.

I was so mad. I took the rat up to the roof, hands shaking all the while, and threw it over the side into the trash pile that was almost half a story high.

And you know what? I survived. And, I learned a valuable lesson that day. Actually, two lessons.

Number 1: If there are maggots, there is rotting flesh somewhere. Look for it and be thorough.
Number 2: Let Bill find the dead rat first.

If you made it to the end, I'm proud of you. Now, go take a shower.

Wednesday, September 17, 2008

Check It Again

I deleted this post yesterday, because the owner of the blog went private. But, she's had a change of heart and since many of you are praying for her, here is her site. Please continue to lift up this little girl, who is struggling, along with her future family.

Friday, September 12, 2008

Pandora's Box

I think we may have opened a door we didn't realize was going to unleash so much fun. This is the scene at our house now that we're allowing Sam to go down the stairs forward-facing.


Thursday, September 11, 2008

Cardiology Appointment

Sam and I kidnapped a friend and drove out to Greensboro today for his cardiology visit. It took us about two hours to get there, and it misted or rained the entire way.


Dr. Buck was his usual wonderful self. Of course, I brag on him because he is very modest, yet exceedingly intelligent and a very gentle person. Sam loves him too. He kept saying, "Bucky Buck today?" this morning before we left.


I realized that I don't have any photos of Dr. Buck, so I grabbed my camera as I was leaving this morning. I thought I'd give you a run down of a typical appointment. It's a bit boring, but Here are some photographs to help you enjoy it more.



When we first get there, the nurse comes out to get us and takes us back to get weighed, measured and a blood pressure check. Sam was 24.8 pounds (with a wet diaper), which I was thrilled about since he was down to 23 at his pedi's office three weeks ago. He is about 32 inches tall (if I remember correctly) and his blood pressure was perfect.


Then, we go into a room where Sam gets these cold and gooey stickers put all over him for an ECG. Two on his legs, some on his shoulders and some on his chest. He usually reacts pretty quickly to the coldness of them, but was preoccupied with the crayons I had given him to be too upset. He is an odd creature. Sam always gets very still when they do anything on his chest. I wonder why.


Next, we wait for Dr. Buck to come in. Just like most doctor's appointments. During this time, I usually try to get all the gooey stuff off of his body. You can see the leads we took off on the chair behind him. We had so much gooey stuff everywhere today - it just wouldn't come off. That's when Dr. Buck arrived to save the day.




He helped us out with some alcohol wipes and sacrificed his own fingers to pull the gook off of Sam's chest. It was a mess. Here is Dr. Buck with Sam - you can see how comfy Sam is in his arms. I'd like to say that Dr. Buck has a special place in his heart for Sam too.

Next, we hold a magnetic device connected to a laptop of sorts up to Sam's defibrillator. It gives Dr. Buck all of the information about what has happened since our last "interrogation" and tells us whether or not he has had any "events." Sam has not.

His pacemaker was used 9% of the time, which is an acceptable amount. All that really means is that his heart rate went below 60 beats per minute 9% of the time since our last visit. Probably while he was sleeping. It's apparently more common in Brugada patients to have episodes or "events" while they are sleeping, which is why Dr. Buck set the pacemaker to work below 60 bpm.

Dr. Buck also tested the sensitivity of the device. He told me that it didn't start "over-sensing" until he programmed it to four times the sensitivity level. That's great news - it means that we have it set to a fine sensitivity level and are safe from it over-sensing the way it did when it was first implanted a year ago (please see August 2008 for more details on our story).

But, here's the big news of the day. I asked Dr. Buck about all the bruises Sam gets around his defibrillator on his belly. If you look at the above photo, you can tell how large it still is in his tiny body. It really sticks out on one corner.

Dr. Buck surprised me by telling me we shouldn't let Sam crawl down the stairs backwards or slide down the slide on his belly. Or any of the numerous other activities he does on his belly. The real issue is a hard surface pressing against it and breaking one of the leads. That could be a potentially dangerous situation.

Oh, and eventually we'll have to prevent him from going down the Tower of Terror and other similar rides, but I think we're okay for now.

In the mean time, we're still keeping him out of the church nursery and other daycare-type facilities, where he would be exposed to germs. But, we're free to allow him to interact with other children as much as possible, in order for him to develop properly. Because he has a condition that is exacerbated by fever, it is important for him to not be put in a "petri dish" (as Bill and I call nurseries) for now.

On a final note, I wanted to show you a picture of our friend Athalia today at Target. She came with us, even though she's been deathly ill with her pregnancy. Her child is causing her some grief with constant nausea, and I was so grateful that she agreed to come anyway. I guess I hadn't really thought it through, so thank goodness she didn't vomit at all during our trip. I had a great time with her. Without further adieu, I give you: Athalia at Target.

I remember feeling like this.

Wednesday, September 10, 2008

Potty Training

Thought I'd add this photo for your viewing enjoyment.




Tomato Soup and Other News

A couple night ago a friend of ours from Raleigh showed up at our doorstep. We were thrilled to see her and gave her tons of apples and fresh tomatoes (which are just starting to ripen) from our property. She was gracious enough to take us to the local Mexican restaurant, which Sam loves afterwards. It is always wonderful to see old friends and hear all the news from Raleigh.

Afterwards, we followed Bill and Sam over to Big Lots. While I was leaving Big Lots, I saw our old neighbor from here in town. I asked him how the old neighborhood is doing (remember, I absolutely hated it there). This also happened to be the neighbor who smoked pot a lot.

He said that things went downhill fast after we left. Some of the neighbors lost one of their dogs in a very inhumane way, and it was left for them on their doorstep. I'll save the gory details. Then, one of their cars was broken into and they were robbed, his nephew was mugged on our old street and finally, the neighbor who lived just next to us had a falling out with her boyfriend. He was apparently so angry he slashed all of her tires and smashed in her windshield. My old neighbor said, "I don't know why it went to h*ll in a hand basket after you left." To which I responded, "we prayed a lot while we were there." And that's the truth. Thank God for protecting our family. Thank God for delivering us from that place. And thank God for giving us that home to live in while we needed it, one that we were safe in for that time.

I was really burdened by everything he said to me. I asked Bill, more than once, how a man could be so cruel to the mother of his own child by destroying her car. I asked him why someone would do that to an animal - a little dog who once jumped into my own car because he was so friendly. I asked Bill why all of this happened. His response to me was the same each time: Because people are worldly and full of sin. They don't have hope and they don't have Jesus.

I only hope that we were a light in that neighborhood while we lived there. I think we were, since our neighbor clearly indicated that after we left things got very dark.

On aonther note: some good news. Tomorrow officially marks three months since Sam's last cardiology appointment. We've NEVER actually made it to a three-month appointment before being interupted by hospital visits and other illnesses.

We're heading to Greensboro and we've invited a friend to tag along, so it shouldn't be too boring of a trip for me this time. Unfortunately, I have a cold. I believe I caught it from Sam, who has been coughing a little and sneezing some. He hasn't had a fever that I know of. I am really hopeful that his immune system kicked this one in the bud before it got too bad. As for me, well, I could complain but I won't. I just want to feel better.

Sam's second birthday party is coming up and I plan on getting lots of little goodies while we're in the big city. We're having a train theme, since he's crazy about trains. I bought a little engineer cap at Tweetsie last week and a train whistle. My parents and we have gone in together to buy him a train table and we've asked everyone coming to bring a train for him. I think he's going to have a blast. I just need to practice on his cake a few times before we celebrate for real. If you want to come and haven't gotten an invitation, let me know! We're gonna have a great time.

Oh, and here's a recipe for old fashioned tomato soup that I love!

1 large can crushed tomatoes or 2 cups fresh
1/2 t baking soda
2 cups milk
2 T butter
1 t salt
1/2 t pepper
Place tomatoes in a large saucepan. If using fresh tomatoes, simmer until tender. If canned, bring to a boil. Add soda. In another pan, scald milk. Add milk to tomatoes and stir. Add butter, salt and pepper, stirring well. Serve immediately. Eat with half of a grilled cheese sandwich - yummy!

Tuesday, September 09, 2008

I'm a Little Late...

Okay, so I'm a few months late on this, but I still think this is hysterical. I heard a short on NPR today about a group called Improv Everywhere. They do these little pranks all over and pretend like nothing has happened afterwards. I sifted through a bunch of their pranks and thought this one was the funniest one. I was laughing so hard! I hope you enjoy it as much as I do. Being a former New Yorker, I thought people's reactions were classic! I wonder how this would go down here in the South?


Ahh, the Mountains

I'm sorry I don't have any pictures to post of what happened this weekend, but it was truly wonderful. Bill and I took Sam on the longest hike of his life - five miles through very diverse terrain. We started in the swamp, went through forest, hiked through huge rocks, next to a river we could have gone swimming in (it was too cool though) and finally ended up in a cow pasture - all up and down a mountain.

Sam loved walking all over the hardened cow pies. He kept saying, "cow pooty!" over and over. He really had us laughing. It took us almost three hours to hike the five miles, so it wasn't too bad. I was a little unprepared, food-wise, but we managed. I guess I didn't realize it would take so long. I'll be prepared for the next trip though. I'll also make sure to bring my camera.

That evening we had our new pastor and his wife over for a meal. They have a lot to teach us about mountain living. They're both from Western North Carolina, so they're "indigenous" to this region. We really are loving getting to know them and our new church.

On Sunday, after church, we went over to some new friend's house for lunch. They have a daughter about Sam's age. Sam didn't play with her as much as he played with her older sister though. We had a fantastic time and ate some really delicious food. It's wonderful getting to know so many new people.

Yesterday morning, Sam, Trish, Elijah and I went down to the Greenway to meet some other new friends. All of us have kids within six months of each other. It's the perfect playgroup. I think it'll be exciting when they're all in one home over the winter, playing and learning together. They took over the playground, after our walk on the Greenway. We looked like a parade coming down the street - four strollers and two bicycles!

Friday, September 05, 2008

Sam's Identity

I am having a bittersweet moment right now. This morning, Sam played with a little girl named Melia (pronounced Ma-Lee-uh). They had a fantastic time together and played really well.

I'll boast about my child for just a second here. You can skip this paragraph if you want. Sam is extremely generous. I am positive it's not because of anything Bill or I have done with him, but he always wants to share his toys and will almost always immediately give a toy to another child if I ask him to. I have to be careful about this though, because sometimes he just needs to hold on to it and play with it for himself, instead of always giving everything away. He really loves being with other children. Older, younger, it doesn't matter. He likes showing off his toys, as every child does, and pulls out toys he's not even interested in when new folks arrive.

Well, our playdate with Melia went really well this morning. She's about six months older than Sam and about two inches taller. She's a beautiful toe-headed little girl, who's curious and articulate and fun to interact with (for me and Sam). She also liked the omelet I made, so I was sold.

Melia is a heart baby too. That's where the title of this post, "Sam's Identity" comes into play. Sam has shown off his belly to anyone we ask him to and to a few we haven't asked him to. This morning, I asked him to show his belly to Melia and her face lit up. She has a "zipper" too. She showed hers to Sam and he glanced at first, then realized something was different. He inspected her belly and then ran his finger along her scar, ending at her JP tube scar. His finger felt it and he said, "ohhhh." Unfortunately, Sam was in a onsie, so I decided to undo it to give him a little more flexibility in sharing his own scar.

He lifted up his shirt, looked at his belly then at Melia. He said, "zipper too" as he lifted her shirt up again.

What a moment. My eyes are filled with tears right now.

Sam really has a heart buddy. Someone who shares the same perfect whitening of her skin as he has, in a long line down her chest. My mind jumped to years from now as they will always have this scar to share between them, and they will each know the unfortunate difficulties that come with it. He's not alone. Neither are we, as the parents.

What a blessing, but how sad. Sam just realized that he's got something that many of us don't. He's got a zipper. But, fortunately for us, Melia has a zipper too. And they found each other.

Wednesday, September 03, 2008

Out and About with 奶奶

I believe that my last post finishes our story for now. I don't intend to revisit it any time soon, as it took a lot out of me emotionally to write it. I hope you enjoyed reading it, or at least got something out of it (since I'm sure some of you wept through most of it) that will be meaningful in your own lives. I'm done.
On another note...
Bill's mother came up from Columbia, SC for Labor Day weekend. We had a great time and took her all over the High Country.

Sam calls her 奶奶, which is pronounced "Nai Nai." It means paternal grandmother in Mandarin. I love hearing him say it.

We went down to the river to play one of the days she was here. We met Elijah and his mommy and daddy (Trish and Brian) down in Todd and spent the afternoon with them. Sam had a blast picking up river rocks and throwing them back into the river with Elijah. Brian would find the biggest ones he thought Sam and Elijah could hold and hand them over.

Apparently I had something important to say. Elijah looks very intent on hearing me. Brian seems to be investigating these larvae that he kept finding on the rocks to some sort of flying insect that lives on the river. I think they were too small for the boys to see them though.



Picking out just the right rocks.


I'm not positive, but it sort of looks like they're going to throw the rocks at the dogs. That never happened. There were lots of folks out with the dogs, tubes and canoes having fun.


"Kabloosh!"

Everyone's got a rock to show someone else, including Nai Nai.


Three generations on a log.

We also had a chance to go trout fishing again. We caught four for our dinner and re-created the last experience we had with my parents and cousins. Bill smoked them with our own apple wood and I put some sea salt, fresh basil leaves, lemon juice and olive oil on them. They were very tasty.




Here we are fishing.

Nai Nai caught a fish, so Sam needed to help get it in the net.


We actually started the day at the Farmer's Market and went from there to Daniel Boone Gardens. Here Sam is at the wishing well with his Nai Nai - throwing rocks, of course!


We also saw some flowers at the garden.


On Labor Day morning, we found these doves roosting in our driveway. They don't seem to be afraid of us. Sam got really close, but he was too timid to reach out and touch it.

Monday, September 01, 2008

Wrapping the Story Up

I have had a hard time finishing this story, because it is such an ongoing struggle in our lives. But, I wanted to give you a different perspective on what happened while all of the medical issues were going on.



So, here goes.


Bill, Sam and I came back to America on April 1, 2006. We had lived overseas for a total of seven years and Sam was born in Hong Kong on October 2, 2006. I had a very difficult pregnancy, due to an intra-uterine infection and we thought I might have to deliver him in East Asia (yet another story for another day!). God saw fit to keep Sam inside of me until it was just about his due date, after three months on bed rest.

We came back to the States to do public relations for our company for about nine months. The plan was to go back to East Asia in January 2007. We left everything set up for our return - our apartment and items were all waiting for us. Sam was only six months old when we came home and had never been sick a day in his life. Everything was progressing towards us returning overseas until his medical issues struck.

When Sam had his ICD implanted, we spoke at length with his cardiologist and the Medtronics representative about returning to East Asia. The Medtronics rep in Chapel Hill spoke with the Medtronics rep in East Asia as well, and he learned that there are many Medtronics reps throughout East Asiawho would be equipped to handle Sam's ICD. However, the biggest problem would be in finding a pediatric cardiologist who specialized in rhythm. At the time of Sam's surgery, we knew we wouldn't be able to return to Kunming, but that we would have to live in a larger city. We never felt the Lord close the door on us returning, but we saw it getting narrower. We delayed our return to East Asia until March 2007, so Sam could heal and we could monitor him for a time.

We were okay with this decision, if not a little concerned about Sam's future overseas. I remember having long conversations with Bill about returning overseas and wondering if it would really happen. One night, while laying in bed, I told Bill that I thought Sam's defibrillator was going to fire before we returned. Dr. Buck had told us it was likely it would never fire, but instead be a "safety net" in case something happened down-the-road.

I really struggled with returning too. My heart wanted to be there, but Sam's situation made me unsettled. Bill was still the head of our home and he was still carefully moving forward, so I stood beside him in the decision. We were both wondering how the logistics of taking Sam overseas would be.

Then one night, within a week of our conversation, Sam got a fever. It was a high one, and when we went in to wake him up for his medication, it raised to about 103F. We gave him his Motrin dose and I took him to my bedroom to feed him. That's when he started retching. I ran to the bathroom so it would be easier to clean up and, there by the dim light of a nightlight, I saw his entire body jolt from his heart outwards. I screamed to Bill that his defib had fired and we needed to call 911. Sam was screaming bloody murder by then.

That was the first time it had shocked him since we returned home from it being implanted. We were hospitalized for about a week, until they could get his fever down. I believe it may have shocked him again in the hospital, but my memory is fuzzy. You can check out in our blog archives somewhere in the late November to December months.

Dr. Buck was still encouraging us to move forward with going back overseas. He was tentative, but felt confident that this was an isolated event and we would be okay. Then Sam fell ill again and had another high fever. This time, his defib shocked him multiple times. We had to call 911 again and spent another week in the hospital.

We were still moving forward with our intent to return to East Asia, mostly because we didn't have any road-blocks in our way, but also because we didn't really feel that God really wanted us to stay in the States yet. I wonder on this side of it if it was because He wanted us to come to a point where we would totally trust Him with our son's life. I can remember begging Him not to take Sam and really understanding more about His sacrifice of His only Son. Those were hard nights of weeping and begging and understanding and reading His Word and weeping some more. Bill and I were without words on many of those nights, but we both understood each other's feelings.

We pressed on.

Then, I was cooking lunch for our neighbors in the kitchen and Sam had just gotten up from a nap. He was walking towards the kitchen and Bill was behind him when he fell down on his bottom. He started crying and I, of course, jumped from my position at the sink and asked Bill frantically if everything was alright. Bill was calm and said he thought so, picked Sam up and placed him back on his feet. He started to take another step when he was visibly shocked by his defib. Bill told me to call 911 and I was hysterical again. I called 911 and Sam was shocked multiple times in our home - his fever having risen to over 102F. Obviously, by now we realized the pattern was that every time he has a fever over 102F, his heart goes into an arrhythmia and his defib must shock him out of it. Sometimes after his heart is "reset" by the jolt of electricity, his heart starts beating fast again (I'm talking over 300 beats per minute) and it must shock him again. We also learned that Sam fell on his bottom because his heart was going into an arrhythmia, but it healed itself. He must have gotten light-headed when it started beating so quickly. The ICD was charging, but aborted before it shocked him.

Our friend David was one of the firemen on call that day. I didn't even recognize him in my haze of fear for my son. But, I had learned by that point not to be hysterical when they arrived, or they would remove me from the situation and I didn't want that. So, I was going through the motions as best I could.

We had to tell the EMTs the situation over and over because it is so unusual for a child of one year to have a defibrillator. During that ride to the hospital, I recall the EMT calling the hospital to tell them we were coming. I heard the woman respond and say, "Sorry? Did you say you have a one year-old with a defibrillator? That's not right, is it?" It was at that point that I had flash-forwards of hearing the conversation in Chinese and it not making sense to anybody. We were all speaking English that day, but people didn't understand. I couldn't imagine doing it in Chinese and it being any better.

When Dr. Buck arrived at the hospital, one of the first things we talked about, after Sam was stabilized, was returning overseas. His face looked grave as he told us he didn't believe we should return with Sam for at least another year. It was obvious that Sam was prone to fevers when he got sick, even without symptoms, and we couldn't risk it.

We were crushed, but I think we both knew this was going to happen. Our lives, ever since we'd been married, were overseas. Our work was overseas. Our friends were overseas. Our home was overseas. You name it...

We immediately started talking about what kind of job we would need to get. What were we qualified for? Where would we live? How would we be able to afford a whole new home - new furnishings, clothes, blankets, kitchen supplies, everything? We hadn't even brought enough clothes back to the States with us. The logistics overwhelmed us. My overseas friend's faces were brought back to my mind over and over. What were going to do?

We had to take it one day at a time and first announce our leave of absence from our company. Then, put the word out that we needed a job. Our friends in America were so helpful to us. We prayed about where to go and what to do. The biggest priority, of course, was keeping Sam close to a good medical facility. Even in America that's an issue.

Eventually, after a few months of consideration and prayer, Bill took his job with Samaritan's Purse. One of our best friends, who we met overseas, wanted Bill to come work with him and it was the perfect position. Bill is now the Regional Manager for South and East Asia at Operation Christmas Child.

Getting to that point was a hard road. Taking out all of the medical issues and just dealing with making a life-changing decision that would affect our lives in such a huge way was enormous and an impossible load to carry on our own. Bill and I were so stressed out with the situation, there were days that we could barely talk to each other. God has completely healed our hearts now and we are more united than we ever were before we walked this difficult road together. Bill is an amazing man, and I don't envy the load he had to bear in making such large decisions for our family. I believe God has worked so mightily in his life and I have seen him grow into someone I hope my son can emulate: a real child of God.

So, here we are. Still in North Carolina, one of the most beautiful places on earth. A little remote as far as medical facilities are concerned, but close enough. God has given us a wonderful pediatrician here, but there are no pediatric cardiologists, let alone one who specializes in rhythm. We still see Dr. Buck, but Sam and I drive to Greensboro for those meetings now.

We were hospitalized about two weeks after moving here in early April, and ended up down in Charlotte, but God redeemed us from that illness as well.

I fear this winter will be hard for our family. We understand from many doctors that children will have high fevers until they are about three years-old. Sam is approaching his second birthday and we are anticipating many more illnesses this winter. I have to balance my fear of him getting sick with my knowledge that he must interact with other children to be emotionally healthy. It's a struggle sometimes, but I think I'm doing alright.

I want you to walk away from reading this understanding that Sam is extremely important to us. Our choice to go back overseas was soley due to our prayerful discoveries with the Lord and wise counsel from doctors.

As I have said before, God was in control of this situation.

Our "stuff" in East Asia, our friends, our lives that were there will wait. We have tried to be obedient in our Walk and do what is best for our whole family. It is better to live in obedience than disobedience, Bill always says. Boy is he right.

God is good.

Next drama: the adoption of our little girl. When will she get here??? I guess we'll learn more about that story as it unfolds right before our eyes.

And as for our "belongings?" Well, my parents moved overseas for a few years and have graciously allowed us to borrow everything of theirs. My sister-in-law gave me some of her winter clothes and we have been able to collect the rest from precious folks who love us. Bill is heading back to East Asia soon and will pick up a few things like our photos and other items, so we won't have to buy everything anew. So you see, it worked out perfectly. We didn't need to spend our time worrying about logistics after all.