Monday, December 29, 2008
Polar Express
Monday, December 22, 2008
Sam's Big New Year
A friend of ours in Australia (a Brugada Buddy) made this for Sam yesterday. We laughed so hard last night watching it, I thought I'd share it with you too. Thanks, Ollie!
Sunday, December 21, 2008
For Papa Vic
Vic, Sam and Tootsie
We will miss you greatly, Papa Vic. We love you. Our hearts are with Tootsie, Bill's grandmother, as she grieves the loss of her husband.
I really hope my next post isn't dedicated to anyone else. Our family can't take much more sadness this holiday season.
Thursday, December 18, 2008
For Jane
A good friend of mine passed away last night. She battled with cancer and the cancer finally won. It really saddens me to be without her in this world, but she was a believer in Jesus Christ and the real battle was won last night for her. I know she is in heaven worshiping the Lord today and she is finally cancer free. I also know she has finally be reunited with her husband, who died on January 3rd just this year. Also a friend.
She meant a great deal to our family and she loved Sam like her own grandchild. She will be sorely missed.
She was always thinking of our family, even to the point of sending Sam a Christmas gift just last week. She could read people very quickly and had a very discerning spirit. She was a great confident as well, and I was priveledged to be hers.
Bill, Sam and I will be heading back to Raleigh for only the second time since we moved away. It's a sad occasion to return, but I greatly want to be with others who loved her and will miss her as I will.
So, this post is for Jane. I love you and am a better person for knowing your love for me and my family. I already miss you.
Monday, December 15, 2008
Musings
I want to understand this whole blog thing - I have my reasons for writing this blog, not the least of which is to educate on Brugada Syndrome. However, I also am including lots of personal stories and fun facts about our lives.
In the process, I think that folks who used to keep up with us via email or telephone still feel like they (you) are connected to us. I think it is a bit one-sided though.
I'm definitely not explaining myself very well.
I appreciate everyone who has left comments and has prayed for our family. Thank you. For those of you who remain silent, I appreciate your keeping up with us as well. If I haven't heard from you in a while, feel free to drop us an email or leave a comment (I won't publish) telling us what's going on with you. I guess I'm saying all of this because I've noticed a drop in communication from our old friends since we moved here and have been keeping up the blog. Maybe you feel like you know what's going on with us, but I don't know what's going on with you!
One final note: I actually only highlight what's been going on with us here - there are many more personal things happening in our lives that I choose not to make public for obvious reasons. This blog is not an effective way to know what's happening in our lives.
Friday, December 12, 2008
Chopping Block
Then I had the opportunity to participate in a free blogger giveaway that my fellow blogger Nan posted on her blog (sadly, I didn't win). Her friend Melissa and her husband (also friends of my brother, Adam, from college) had recently started their own business. When I saw that Randy had made a farmer's table that was really beautiful, I thought maybe he could make me a chopping block.
I contacted them, and sure enough, he could...and did! For a fraction of the cost, but the workmanship is excellent. I told him everything I wanted/desired in a chopping block, including edge-grain, and a drawer, along with slats at the bottom. He designed it himself, with my desires in mind, and I finally picked it up yesterday in Greensboro.
With no further ado, I present my brand new chopping block, hand-crafted by Randy Lewkowicz.
Thursday, December 11, 2008
Cardiology Update
Aside from torrential rains on the way there and home, not to mention 8 hydroplanes (thank goodness for AWD), the visit was a good one. Sam's defibrillator is working as well as it can in his little body, all the numbers were good. His heartbeat obviously still looks different from a "normal" heartbeat, but it keeps his body alive and this is only a problem when it comes to the sensitivity of the device. In case you didn't know, his R and T-waves are backwards - and unless you know something about hearts, this won't make any sense to you.
Sam did great as three different doctors listened to his heart. Then Dr. Buck used leads and connected him to the "interrogator." I love that name. It's this laptop device that has a magnet connected to it and can read everything that his defibrillator has recorded for the last three months. Great invention.
We learned that one of the residents who treated Sam after his febrile seizures is going to publish a paper in a medical journal about complex febrile seizure and Brugada Syndrome, along with Dr. Buck. Of course, Sam will be anonymous, but I have asked for a copy so I can post it. It sounds like we are really getting out a lot of information about Brugada - which is one of the points of my blog, but I have also made it clear to Dr. Buck that anything we can do to help - count us in!
Also, we learned that they have still not located the genetic marker that carries Sam's particular form of Brugada. It may take them years to locate it, since it wasn't on the normal three genetic markers that only 20% of other Brugada patience have. We'll continue to wait for that.
I believe that is all. Please let me know if you have any questions. I'm exhausted and don't think I'm making sense.
Off to the Cardiologist
I've had a difficult time trying to explain to Sam his condition lately. He has taken to running his fingers down his scar when we take his shirt off and saying, "uh oh, Mama, a boo boo." I've used the word "zipper" with him before, but I'm not sure how I really feel about it - it sort of implies that we're going to open him back up again. I'm going to talk to Dr. Buck about other ways to approach this or other words to call it. I've told him it's his scar and emphasized it's not a "boo boo" but instead a blessing from God. But, I also know that there is a world of heart patients who use their own phrases for this kind of thing and I want him to be able to communicate with them one day too.
I've also showed him this video that Mark O'Shea, a country singer, put together. He highlights patients at Vanderbilt Hospital when they were little and as they grow (some are still little) and then shows that he himself was a patient. I just want Sam to see that he is not alone.
Any insight is welcomed.
Tuesday, December 09, 2008
David and Goliath
6pm Dinner
6:50pm Bath time
7pm Brush teeth
7-7:15pm Read three books
7:15pm In bed, lights out, pray
Usually we can leave the room with no problems. Bill is almost always a part of story time, and if he's home, he always lays down in Sam's bed with him to pray and say goodnight, while I kneel beside him. Lately, Sam's been getting upset and begging one of us to tell a story before we leave. I'm not sure why, but I am usually the story teller. When it falls on Bill, he always tells a Bible story, but when it's my turn, I usually just make one up. I really love that Bill tells so many Bible stories, so I decided to tell one last night (Bill didn't get home until well after Sam was already in bed).
When I make a story up, I usually ask Sam to help finish it. It's like that new movie "Bedtime Stories" (which I cannot wait to see!) when Adam Sandler is asking his niece and nephew what happens next. (I think I may have even found a babysitter for when it comes out, but I'm not holding my breath - we may just have to wait for the DVD, as with every other movie. But, I digress)
So, when I started telling the story of David and Goliath last night, here's what came of it:
Me: A long long time ago, there was a boy named David and he had a lot of brothers. His brothers were far away one day when his father asked him to take them a meal. When David got there, he learned they were fighting the Philistines. And do you know what he found?
Sam: A giant! (he knows this story well)
Me: That's right. And David was surprised that the Israelites allowed the Philistines to insult his God, so he wanted to fight the giant. When King Saul heard that David wanted to fight Goliath, the giant, do you know what he did?
Sam: He ate raspberries!
Me: (giggling a little) Well, I don't know, I suppose he could have offered him raspberries. But, what he also did was to offer his very own armor. But do you know what? The armor was too big. So what did David do?
Sam: More raspberries?
Me: No. No raspberries.
Sam: Apples?
Me: No. No apples...He picked up five smooth stones and slung one in his sling shot and hit the giant right in between his eyes and killed him. And do you know what happened to David?
Sam: Ride the horsies!
Me: Probably. Because he became one of Saul's most trusted men after that.
Sam: Do it again. Tell the story again! Cows! Apples? Okay, Mama?
Me: Night night Sam. Now you can tell your teddy bear the same story.
Sam: (Holding up his teddy bear) Kiss now!
So, I kissed his teddy bear good night and kissed Sam good night and left the room. An hour and a half later, when Bill came home, I told Bill he needed to go say good night to Sam (because I had promised it in one of my deal-makings earlier in the evening). Bill went in and Sam, who was still awake but lying still, promptly told Bill to kiss his teddy good night.
And then he fell asleep.
Wednesday, December 03, 2008
You're Not Going To Believe This
Alright, so he's not spelling his name for the camera, but it's only because he's so excited about all the other things he can type. I swear he knows how to spell his name too.
Last week in Myrtle Beach, we all went to Brookgreen Gardens. While we were there, we ate at the Pavilion Restaurant on the grounds. I stole an oyster cracker from my Uncle Patrick while he wasn't looking and handed it to Sam, who promptly said, "wook, Mama, a hexagon." I kid you not.
We had even had a conversation about a hexagon two weeks ago. Sam said something was a hexagon, but I corrected him and said it was an octagon. Bill promptly corrected me and said six sides is a hexagon, eight is an octagon. Um, yeah, I knew that. Just testing everyone.
It was that afternoon that the whole family and I decided it wouldn't be prudent for me to home school - he will likely surpass me in intelligence by the first grade. But, hey, at least I can blog about it!
Tuesday, December 02, 2008
Doctor Visit

Then she started fiddling with the top one - I suppose she was wondering why it wasn't balancing correctly. You see, I am 125 pounds. There was no way she was going to get it to work properly if she kept the lower weight on 150 pounds. I felt a little affronted at this point - I mean, did this woman actually think I weighed more than 150 pounds? I know I've gained some holiday weight, but come on.
As to my name being mispronounced, the doctor did it once and the lady at the check-out counter repeated the same mistake.
But, I can now understand why some women choose to stay at home than to visit a doctor's office where her weight is announced for everyone to hear. I'm learning.
Monday, December 01, 2008
Crawford Reunion 2008
The day after Thanksgiving, my daddy's cousin drove with my brother to Wilmington and picked up two bushels of oysters. Our family loves to cook and we don't just cook your ordinary mundane items. If we're going to do it, we'll do it right. They cooked them up and then we spread them out on newspaper and just dug in. We ate until our eyes were bursting and then we had our second course, around 10pm...

...a low-country boil! Sausage, corn and shrimp boiled with some spices make the most amazing meal. We spread that out across the table too and, again, dug in.
On Thanksgiving Day, we ate fried turkey, smoked pork butt, and various side dishes. It was so delicious we could barely eat all the desserts we made. In fact, it took us three more days to finish off all the desserts!
Our hotel was right on the beach, so we got to have a few walks to collect sea shells and enjoy the ocean. Sam didn't want to keep any shells, he only wanted to throw them back into the ocean.
My parents couldn't make it, because they're in Thailand, so we really missed them. All of Daddy's surviving brothers and sister were there, plus cousins and my great aunts and uncle. It was a special time to remember why we are thankful. It was especially neat for me to see those whom we have grafted into our family, whether by adoption or by marriage.
I got to spend some time with my new nephew Crawford too. We put the boys together and took a few fun photos while Crawford's mommy and daddy were out.
I think they both enjoyed each other. The Winnie the Pooh doll that Crawford is holding has some meaning. When I was on bed rest with Sam, my Daddy's cousin Jan bought one for Sam. She sent it all the way to Hong Kong for me and told me her daughter had enjoyed a similar one when she was little. Jan passed away last year (we miss her dearly), but I bought one for Crawford to have in her honor. It appears that he loves his Pooh Bear, and I think Jan would be thrilled.
I'll post more pictures soon, I just wanted to give some of the highlights for now. I hope everyone had a great Thanksgiving too.
Adoption update: It looks like we won't be hearing anything for another two weeks. I'll continue to update you as I know more.
Tuesday, November 25, 2008
Crawford Family Reunion!!!
My paternal grandmother's maiden name was Crawford, a name that has stayed in our family. My father, older brother and my nephew all carry it as their middle names. My great grandfather, Audis Crawford, was a private investigator in Mississippi and I even have a book that was published called "Crawford Law" which is all about his crazy adventures as a PI. Maybe I'll share some of them one day - I remember when I was on bedrest I read every story twice.
Sam had a great morning out at the library. I thought with all the craziness we are about to put him through, I might as well allow him to enjoy something more in his routine. We even got to see Sam's friend Trathan today (pictures to come later).
It's now the end of the month, and I know there are many of you out there praying specifically for our adoption through the end of November. The next time that referrals are "supposed" to come out is the end of the month - so we should know by early next week whether or not we were in this batch. Please remember the situation and I will update you when we return. We will not have internet in South Carolina.
Here's a great recipe for Butternut Squash Bisque that I have used before and adored.
1 tablespoon oil
1 tablespoon unsalted butter
1/2 cup diced onion
3/4 cup diced carrots
4 cups peeled and cubed butternut squash
3 cups vegetable stock
salt and ground black pepper to taste
ground nutmeg to taste
1/2 cup heavy cream (optional)
Heat the oil and melt the butter in a large pot over medium heat. Cook and stir the onion in the butter and oil under tender.
Mix the carrots and squash into the pot. Pour in vegetable stock, and season with salt, pepper, and nutmeg. Bring to a boil, reduce heat, and simmer until vegetables are tender. I sometimes bake the butternut squash first - cut it in half lengthwise and put facedown on a cookie sheet. Bake at 400 for about 45 minutes, or until tender. Then add it to the blender.
In a blender or food processor, puree the soup mixture until smooth. Return to the pot, and stir in the heavy cream. Heat through, but do not boil. Serve warm with a dash of nutmeg.
And, just for good measure, here's my Tuna Dip (since Shannon asked):
1 package cream cheese, softened
1 can spring-water packed tuna fish
1 T green onions
1 t curry
Drain the tuna and mix it with the melted cream cheese. Add the onions and curry. Put a little paprika on top. Serve with triscuits or some other type of nice light cracker. Not Ritz crackers, though.
Monday, November 24, 2008
Artichoke Dip
1 can artichokes, drained and chopped
1 small can mild green chili peppers, chopped (can find in the Mexican food section)
1 cup mayonnaise (Hellman's tastes best)
1 1/2 t ground black pepper (coarsely ground is best)
1 bag small shredded Parmesan cheese (maybe around 5 or 6 ounces)
Mix the first four ingredients together and add about 2/3 of the bag of parm cheese. Place all the ingredients in a small casserole dish. Sprinkle the remaining cheese on top and add a little paprika for color. Bake at 400F (200C) for about 20-25 minutes. Serve warm with Wheat Thins or Better Cheddars.
This recipe can be easily doubled.
I have used grated Parmesan cheese before, and though it's not as good, it's cheaper and still works.
More to come...
Sunday, November 23, 2008
Peanut Butter Pie and Shoeboxes
Here's another recipe for you to enjoy. This one is very simple and always a favorite at any time of the year. It is especially fun for our little ones (or grown-ups) to lick the bowl.
Peanut Butter Pie - from my Great Aunt Joyce
6 ounces cream cheese
6 ounces cool whip (I have often substituted whipped cream for this when I lived in China)
3/4 cup powdered sugar
1/2 cup peanut butter
2 T milk
Beat cream cheese and sugar until fluffy. Add peanut butter and milk. Then add the cool whip. Pour into a graham cracker crust and refrigerate. Serve with a sprinkle of finely chopped peanuts (I omit) and a dollop of cool whip.
(Crust: 1 cup graham cracker crumbs, 1/3 melted butter, 1/4 cup sugar - press into pie plate and refrigerate for one hour before using or bake at 375F for 8 minutes)
Let me know if you make it how it turns out. I made some for a party tonight and everyone seemed to like it. I didn't tell them that the graham crackers in the crust were from scratch too - it might have made their heads explode.
Saturday, November 22, 2008
Family Recipe: Lemon Chess Pie
I just made it a couple days ago, to "practice" for our big Thanksgiving meal. We are headed to Myrtle Beach for our Crawford Family Reunion - back to the original place it was held in 1979. I'm making a few family desserts for the reunion and hoping everyone will enjoy my own rendition of our pies.

Lemon Chess Pie:
1 2/3 cup sugar
1 T flour
1 T cornmeal
Grated rind of two lemons (don't get too close to the white rind)
Blend together with a fork in a bowl.
4 unbeaten eggs
1/4 cup melted butter (half stick)
1/4 cup lemon juice (juice from both of those lemons)
1/4 cup sweet milk (sweetened condensed milk)
Beat together with the sugar mixture until smooth and creamy.
I used a fork - don't over beat it.
Bake in an unbaked deep dish or 9 inch pie at 375 for 25-40 minutes or until set (doesn't wiggle a lot in the middle). It should be a nice golden color on top.
Another option, which I did the other day, is to roll out your dough into a muffin tin and spoon about two tablespoons of the lemon mixture into each cup. Bake for a little less time - about 20 minutes - and keep your eye on it.
Don't have a great crust recipe? Here's my favorite from a cookbook called "Apple Pie Perfect," the very best pie cookbook I've ever found:
Butter Crust
1 3/4 cup all purpose flour
1 T sugar
1/2 t salt
1/2 cup (1 stick) cold unsalted butter, cut into 1/4 inch pieces
1 large egg yolk
About 3 T cold water
Combine the flour, sugar and salt in a large mixing bowl and mix well. Scatter the butter pieces over the dry ingredients and cut them in, using a pastry blender or two knives, until the butter is broken into very fine pieces.
Place the egg yolk in a 1-cup measuring cup and add just enough of the water to equal 1/4 cup liquid. Using a fork, blend the water and the yolk.
Sprinkle about half the liquid over the flour, mixing it in with a fork. Lift the mixture up from the button of the bowl and press down on the downstroke. Add the remaining liquid a little at a time until the dough coheres. You may need 1 to 2 teaspoons more.
Makes enough pastry for one 9-inch deep dish pie shell.
Friday, November 21, 2008
Another Snowfall?
The roads were terrible today too. I can't tell you how many cars I saw coming towards us, but their wheels were facing a different direction. They plowed our road by 8:45, and it was still very bad.
Sam and I had to go over to the pediatrician's office for a Synagis shot today. The kiddos who get this shot have to get it within 30 days of the last one, so we absolutely had to get over to the pedi's office for it.
Once we left the pedi's office, I actually sat in my car for a long time thinking about how to get home. The road wasn't plowed and the snow was pretty compacted. I am very comfortable driving in snow, but some of the folks out here don't seem to be. I was stuck behind one line of cars that had an older man driving 5 miles per hour with his hazards on at the head of it. That's dangerous in and of itself.
We made it home, by the grace of God.
I want to post a few more recipes, especially with Thanksgiving coming up. But, I'm not sure what everyone is interested in making. Here are some choices for you:
Peanut Butter Pie
Lemon Chess Pie
Butternut Squash Bisque
Pumpkin Cheesecake
Tuna fish Dip
Artichoke Dip
Any favorites? What are you guys making for the holidays?
Tuesday, November 18, 2008
Another Snow Day
Sam has been feeling so much better and I am trying to incorporate play dates into his routine again. On Sunday, we had some friends over who have two little girls (one only six days younger than Sam). He had a blast with them and even learned how to crawl into the bathtub by himself and play with his bath toys (we found him and Madi in there after some silence).
Yesterday we got to see Elijah for lunch. Elijah can say Sam's name now, and lots of other words. It was fun to be able to hang out with them after a week's long break.
This morning we went to the library for story time. There were only a few people who braved the roads to get there, but we had a great time. There is this little boy named Bobby who Sam has fallen in love with. He had Thomas the Tank Engine snow boots on, for goodness' sake. Who wouldn't love him? And his little sister is adorable too. Sam played with both of them for a long time today.
In other news, Sam's been coloring like a mad man. He started drawing hippos on Sunday.

Here he is with his masterpiece of the day. These Magnadoodles are incredible. Sometimes I have to snatch it from him before he erases it himself, so I can get a picture of what he's drawn. Just today he drew a crocodile with a chin - he described the whole thing to me as he was making it and erased it so quickly I couldn't get the camera. To be honest with you, it looked like a crocodile. I'm not sure how much that hippo looks like a hippo (he told us that is what it was), but the crocodile was dead on.
Saturday, November 15, 2008
Graham Crackers and Odd Spaces
I could tell that he was starting to feel better yesterday morning as he was moving a heavy wooden stool around the house. He rolled a ball under the couch, carried the stool to the couch and stood up to look behind it to find his ball.
Then I looked away for a minute. You realize a minute is all it takes, right?

This is the scene I ran to. He actually moved the stool to the side of the couch to help him get this ball. Then he fell in between the couch and the wall. I couldn't stop laughing. I think he was a little upset at first, but with all my giggling, he soon came around. Obviously, he couldn't get out without help. I sure hope he learned some kind of lesson, but I'm not sure what it would be.
Here's a conversation I had with Sam yesterday, while he was coloring (for the four hundredth time in the day):
Me: Wow, is that a tree? It looks so much like a tree.
Sam: No, it's grass.
Me: Oh. Grass. And now you're drawing the sun? Wow.Sam: No, Mama. It's a circle.
Well, duh. I feel so dumb sometimes.
On to the Graham Crackers, which some of you have patiently waited for.
This is from the Fannie Farmer Baking Book, with a few adjustments on my end.
4 T (1/2 stick) butter, softened
1 egg
6 T sugar
2 T honey
2 T molasses
1/2 t baking soda
2 t water
3/4 t salt
1 1/2 C graham flour (I used whole wheat)
3/4 C all-purpose flour
Preheat the oven to 350 F.
Combine the butter, egg and sugar in a bowl and beat until smooth and creamy.
Stir in the honey and molasses and blend.
Dissolve the baking soda in the water and add to the butter mixture.
Add the salt, graham flour, and all-purpose flour to the mixture and blend thoroughly. The dough should hold together and be manageable. If it is too "tacky" add a little more graham flour.
Liberally dust two cookie sheets with flour.
Split the dough in half or do 1/3 and 2/3 and roll out on each cookie sheet - I used my fingers to press it down. It should be about 1/8 inch thick - remember, the soda will make it rise a little.
If you want them to be as thick as I have in my picture, don't split the dough at all, but you will have a more chewy cracker.
Score the dough with a pizza cutter or knife, but not all the way through, into squares. Depending on the size you make you could have 20-40 per cookie sheet.
Prick each square a few times with the tines of a fork.
Bake for 15 minutes.
Remove from the oven. Gently lift out with a spatula and slide onto cooling racks. Once they are cooled, they'll be ready to eat - but Sam and I like ours warm.
